Registration - Consultant

RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares / Stephanie Levee, Consultant

Registration Information

Client name: RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares
Lobbyist name: Stephanie Levee, Consultant
Initial registration start date: 2020-06-26
Registration status: Active
Registration Number: 945399-366974

Associated Communications

Total Number of Communication Reports: 11

Monthly communication reports in the last 6 months: 2

Version 9 of 10 (2024-04-26 to 2024-05-03)

Registration versions:

Version 9 of 10 (2024-04-26 to 2024-05-03)

Lobbying Information

Subject Matter Details

Details Regarding the Identified Subject Matter
Subject matters	Details	Categories
Budget, Health, Industry	Bill C-64: An Act respecting pharmacare, with a particular focus on access to medicines and rare disease and orphan drug policies	Legislative Proposal, Bill or Resolution
Budget, Health, Industry	Engagement with officials on issues related to the National Strategy for Rare Disease Drugs, and other policies or programs related to rare diseases.	Policies or Program
Budget, Health, Industry	Federally-funded public drug plans, with respect to reimbursement fof medicines for federal plan beneficiaries.	Policies or Program
Budget, Health, Industry	Federal programs and budgetary initiatives related to the Federal-Provincial-Territorial funding arrangements regarding pharmaceuticals including any health technology assessment-related or other policy discussions that might involve Health Canada and its ongoing relationship with the Canadian Agency for Drugs and Technologies in Health (CADTH), Canada's Drug Agency and/or other pan-Canadian health organizations.	Policies or Program
Budget, Health, Industry	Guidelines, policies and programs related to regulatory and reporting functions of the Patented Medicine Prices Review Board	Regulation, Policies or Program
Budget, Health, Industry, Research and Development, Science and Technology	Innovation, Science and Economic Development Canada regarding the Innovation and Skills Agenda, the Biomanufacturing and Life Sciences Strategu and other government policies and programs related to incentivizing research and development activities in Canada.	Policies or Program
Health	Regulatory amendments and/or guidelines and/or policies related to the Food and Drugs Act and Health Canada review of drugs for rare diseases.	Regulation, Policies or Program

Communication Techniques

Written communication
Oral communication

The lobbyist has arranged or expects to arrange one or more meetings on behalf of the client between a public office holder and any other person in the course of this undertaking.

Government Institutions

Global Affairs Canada (GAC)
Health Canada (HC)
House of Commons
Innovation, Science and Economic Development Canada (ISED)
Justice Canada (JC)
Patented Medicine Prices Review Board (PMPRB)
Prime Minister's Office (PMO)
Privy Council Office (PCO)
Senate of Canada

Client Details

Government funding

No government funding was received during the last completed financial year.

Client Contact Information

Address:
PO Box 81062
Ottawa, ON K1P 1B1
Canada

Telephone number: 613-800-8340

Client representative

Bob McLay, Chair

Parent Company Information

RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares is not a subsidiary of any other parent companies.

Coalition Members Information

Alexion Pharma Canada Corp.
- 3100 Rutherford Road
  Suite 300
  Vaughan, ON L4K 0G6
  Canada
Amicus Therapeutics Canada Inc.
- 6500 Trans-Canada Road
  4th Floor
  Pointe-Claire, QC H9R 0A5
  Canada
Argenx Canada Inc.
- 9131 Keele Street Suite A4
  Vaughan, ON L4K 0G7
  Canada
Biogen Canada Inc.
- 90 Burnhamthorpe Rd W
  Suite 1100
  Mississauga, ON L5B 3C3
  Canada
Biomarin Pharmaceuticals Inc.
- c/o Mark Bennett, Cassels Brock, 40 KING STREET
  2100 SCOTIA PLAZA
  Toronto, ON M5H 3C2
  Canada
Boehringer Ingelheim Canada Limited
- 5180 S Service Rd
  Burlington, ON L7L 5Y7
  Canada
GlaxoSmithKline
- 100 Milverton Drive Suite 800
  Mississauga, ON L5R 4H1
  Canada
Horizon Therapeutics Canada
- 9131 Keele Street
  Unit 4A
  Vaughan, ON L4K 0G7
  Canada
Ipsen Pharmaceuticals Canada Inc.
- 5060 Spectrum Way
  5th Floor
  Mississauga, ON L4W 5N5
  Canada
Johnson & Johnson Innovative Medicine
- 19 Green Belt Dr.
  Toronto, ON M3C 1L9
  Canada
Mitsubishi Tanabe Pharma Canada
- 100 King St West
  Toronto, ON M5X 1C9
  Canada
Recordati Rare Disease Canada Inc.
- 3080 Younge Street
  Suite 6060
  Toronto, ON M4N 3N1
  Canada
Sanofi-Aventis Canada Inc. / Sanofi-Aventis Canada Inc.
- 2905 Place Louis-R.-Renaud
  Laval, QC H7V 0A3
  Canada
Sobi Canada Inc.
- 1155 North Service Rd. West
  Unit #11
  Oakville, ON L6M 3E3
  Canada
Takeda Canada Inc.
- 22 Adelaide St W Suite 3800
  Toronto, ON M5H 4E3
  Canada
Ultragenyx Canada Inc.
- 2900 - 550 Burrard Street
  Vancouver, BC V6C 0A3
  Canada
Vertex Pharmaceuticals (Canada) Inc.
- 20 Bay Street
  Suite 1520
  Toronto, ON M5J 2N8
  Canada

Individual, organization or corporation with a Direct Interest Beneficiary Information

The activities of RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares are not controlled or directed by another individual, organization or corporation with a direct interest in the outcome of this undertaking.

Subsidiary Beneficiary Information

RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares does not have any subsidiaries that could have a direct interest in the outcome of the undertaking

Lobbyist Details

Stephanie Levee | Public offices held

Business address:
150 Metcalfe Street, Suite 604
Ottawa, ON K2S 2L8
Canada

Telephone number: 613-800-8340

Consultant Firm and Address

Firm: 3Sixty Public Affairs Inc.

Address:
150 Metcalfe Street, Suite 604
Ottawa, ON K2P 1P1
Canada

Telephone number: 613-800-8340

RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares

The following names have been used on or after July 2, 2008

The following names have been used on or after July 2, 2008
Name	From	To
RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares	2024-04-26	current
RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares	2020-06-26	2024-04-26

RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares

Responsible Officer History
Responsible Officer Name	From (YYYY-MM-DD)	To (YYYY-MM-DD)

Stephanie Levee, 3Sixty Public Affairs Inc. (Consultant)

Learn more...

Registrants are required to submit a monthly communication report for each oral and arranged communication with a designated public office holder. The name of the most senior paid officer (i.e. the registrant) will appear on all in-house monthly communication reports, whether or not he/she participated in the communication.

Note: Monthly Communication Reports are due on the 15^th day of each month for communications that took place in the previous month.

Results below are sorted by posted date, beginning with the most recent.

Results 1-11 of 11

RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Francesco Sorbara, Member of Parliment | House of Commons
Subject Matter of the communication: Budget, Health, Industry, Research and Development, Science and Technology
Communication date: 2024-04-30
Posted date: 2024-05-15
Communication number: 366974-602220 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Mohamed-Iqbal Ravalia, Senator | Senate of Canada
Subject Matter of the communication: Budget, Health, Industry, Research and Development, Science and Technology
Communication date: 2024-04-30
Posted date: 2024-05-15
Communication number: 366974-602219 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Stephen Ellis, MP for Cumberland—Colchester | House of Commons
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2023-04-26
Posted date: 2023-05-15
Communication number: 366974-564286 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Michelle Mujoomdar, Director | Office of Pharmaceutical Management, Specialty Pharmaceuticals | Health Canada (HC)
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2022-09-28
Posted date: 2022-10-15
Communication number: 366974-543161 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Adam Van Koeverden, Member of Parliament | House of Commons
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2022-03-01
Posted date: 2022-04-16
Communication number: 366974-527447 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Adam van Koeverden, Member of Parliament | House of Commons
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2022-03-01
Posted date: 2022-04-16
Communication number: 366974-525460 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Brent Lawlor, Director | Canadian Drug Agency Transition Office | Health Canada (HC)
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2022-01-14
Posted date: 2022-02-15
Communication number: 366974-521495 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Francesco Sorbara, Member of Parliment | House of Commons
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2022-01-13
Posted date: 2022-02-15
Communication number: 366974-521493 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Holly Duggan, Manager of Stakeholder Relations | Office of the Leader of the Opposition | House of Commons
- Alexander MacDonald, Policy Advisor | Office of the Leader of the Opposition | House of Commons
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2021-11-30
Posted date: 2021-12-15
Communication number: 366974-516857 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Melissa Lantsman, Member of Parliament | House of Commons
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2021-11-19
Posted date: 2021-12-15
Communication number: 366974-516842 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Adam Vaughan, Member of Parliament | House of Commons
Subject Matter of the communication: Industry, Health, Economic Development, Intellectual Property, Science and Technology, International Trade, Taxation and Finance
Communication date: 2021-06-30
Posted date: 2021-07-05
Communication number: 366974-509574 View associated registration

Stephanie Levee, 3Sixty Public Affairs Inc. (Consultant)

Learn more...

Results below are sorted by posted date, beginning with the most recent.

Results 1-11 of 11

RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Francesco Sorbara, Member of Parliment | House of Commons
Subject Matter of the communication: Budget, Health, Industry, Research and Development, Science and Technology
Communication date: 2024-04-30
Posted date: 2024-05-15
Communication number: 366974-602220 View associated registration
RAREi - The Canadian Forum for Rare Disease Innovators
Consultant: Stephanie Levee

Designated Public Office Holders who participated in the communication:
- Mohamed-Iqbal Ravalia, Senator | Senate of Canada
Subject Matter of the communication: Budget, Health, Industry, Research and Development, Science and Technology
Communication date: 2024-04-30
Posted date: 2024-05-15
Communication number: 366974-602219 View associated registration

List of Public Offices Held
Position	Period Held	Last Date Designated Public Office Held
Post-Secondary Co-Operative Educational Intern Department of Canadian Heritage, Centre of Expertise for Grants & Contribution	May 2018 to August 2018	Not a designated office

List of Public Offices Held
Position	Period Held	Last Date Designated Public Office Held
Post-Secondary Co-Operative Educational Intern Department of Canadian Heritage, Centre of Expertise for Grants & Contribution	May 2018 to August 2018	Not a designated office

Date Modified:: 2024-04-04

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Registration - Consultant

RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares / Stephanie Levee, Consultant

Registration Information

Associated Communications

Version 9 of 10 (2024-04-26 to 2024-05-03)

Version 9 of 10 (2024-04-26 to 2024-05-03)

Subject Matter Details

Communication Techniques

Government Institutions

Government funding

Client Contact Information

Client representative

Parent Company Information

Coalition Members Information

Individual, organization or corporation with a Direct Interest Beneficiary Information

Subsidiary Beneficiary Information

Consultant Firm and Address