Office of the Commissioner of Lobbying of Canada
Registry of Lobbyists

Monthly Communication Report

367524-681942

Registrant name: Johanne Chambers
Client: RAREi - The Canadian Forum for Rare Disease Innovators/RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares
Associated registration: 942584-367524-10
Communication date: 2026-04-14
Posted date: 2026-05-15

Designated Public Office Holders who participated in the communication: Dan Mazier, Member of Parliament
House of Commons
 
List of Details
Subject matter Detail
Health, Industry, Intellectual Property Enhancements related to intellectual property legislation, regulations and policies applicable to rare disease medicines.
Budget, Health, Industry, Research and Development, Science and Technology Enhancement to Canada's regulatory and funding environment for new rare disease medicines, including Health Canada authorizations of medicines and framework for clinical trials, health technology assessment processes, reimbursement negotiations and funding decisions.
Budget, Health Federally-funded public drug plans, with respect to reimbursement for medicines for federal plan beneficiaries.
Budget, Health, Research and Development Implementation of the National Strategy for Drugs for Rare Disease, and other policies or programs related to rare diseases.
Economic Development, Health, Industry, Intellectual Property, Research and Development, Science and Technology Innovation, Science and Economic Development Canada regarding the Innovation and Skills Agenda and other government policies and programs related to incentivizing research and development activities in Canada, including the Biomanufacturing and Life Sciences Strategy.
Economic Development, Foreign Affairs, Health, Industry, Intellectual Property, International Trade, Research and Development, Science and Technology Issues related to U.S. pharmaceutical importation, trade and policies, including research and development, regulatory authorizations, funding of medicines, supply sources and supply chains.
 

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