Registration - In-house Organization

The Jesse Davidson Foundation - Defeat Duchenne Canada / The Jesse Davidson Foundation - Vaincre Duchenne Canada / Nicola Worsfold, Executive Director

Registration Information

In-house Organization name: The Jesse Davidson Foundation - Defeat Duchenne Canada / The Jesse Davidson Foundation - Vaincre Duchenne Canada
Responsible Officer Name: Nicola Worsfold, Executive Director
Responsible Officer Change History
Initial registration start date: 2022-08-01
Registration status: Active
Registration Number: 962199-372815

Associated Communications

Total Number of Communication Reports: 18

Monthly communication reports in the last 6 months: 0

Version 8 of 9 (2024-08-19 to 2025-09-15)

Registration versions:

Version 8 of 9 (2024-08-19 to 2025-09-15)

Lobbying Information

Subject Matter Details

Details Regarding the Identified Subject Matter
Subject matters	Details	Categories
Health	Access to treatments for Duchenne muscular dystrophy	Policies or Program
Health	Develop an expedited and economical pathway to encourage industry to apply to Health Canada for approval of treatments for Duchenne muscular dystrophy.	Policies or Program
Health, Research and Development	Discuss partnership/cost sharing ideas to increase immediate access to Duchenne treatment abroad.	Policies or Program

Communication Techniques

Written communication
Oral communication
Grass-roots communication

Government Institutions

Accessibility Standards Canada
Health Canada (HC)
House of Commons

In-house Organization Details

Description of the organization's activities

Defeat Duchenne Canada is dedicated to ending Duchenne muscular dystrophy. We provide leadership in research, advocacy and support to ensure boys and young men can live long and active lives. Our vision is a future without Duchenne.

Responsible officer name and position during the period of this registration

Lisa McCoy, Chief Executive Officer

Organization's membership or classes of membership

Registered non-profit charitable organization

Government funding

No government funding was received during the last completed financial year.

In-house Organization Contact Information

Address:
200 Queen's Ave Suite 611
London, ON N6A 1K7
Canada

Telephone number: 519-645-8855

Lobbyists Details

Employees who lobby for the organization

Jordan Hamilton, Director, Development | No public offices held
Lisa McCoy, Chief Executive Officer | No public offices held
Judy Wiles, Director, Research and Advocacy | No public offices held

The Jesse Davidson Foundation - Defeat Duchenne Canada/The Jesse Davidson Foundation - Vaincre Duchenne Canada

The following names have been used on or after July 2, 2008

Name	From	To
The Jesse Davidson Foundation - Defeat Duchenne Canada/The Jesse Davidson Foundation - Vaincre Duchenne Canada	2022-08-01	current

The Jesse Davidson Foundation - Defeat Duchenne Canada / The Jesse Davidson Foundation - Vaincre Duchenne Canada

Responsible Officer History
Responsible Officer Name	From (YYYY-MM-DD)	To (YYYY-MM-DD)
Nicola Worsfold	2025-09-15	Current
Lisa McCoy	2023-11-13	2025-09-15
Richard Moss	2023-05-15	2023-11-13
Perry Esler	2022-08-01	2023-05-15

Date Modified:: 2026-02-13

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Registration - In-house Organization

The Jesse Davidson Foundation - Defeat Duchenne Canada / The Jesse Davidson Foundation - Vaincre Duchenne Canada / Nicola Worsfold, Executive Director

Registration Information

Associated Communications

Version 8 of 9 (2024-08-19 to 2025-09-15)

Version 8 of 9 (2024-08-19 to 2025-09-15)

Subject Matter Details

Communication Techniques

Government Institutions

Description of the organization's activities

Responsible officer name and position during the period of this registration

Organization's membership or classes of membership

Government funding

In-house Organization Contact Information

Employees who lobby for the organization